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Friedreich's Ataxia Parents Group

 

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FAPG Posting Guidelines and Policy of Confidentiality

Posting to the List
Virus Detection Software Required
Flaming Not Allowed
Yelling
Chain Email
Religious Posts
Virus Warnings
Use Plain Text and Send No Attachments
Subject Line
To Reply
How to change your password or email address subscribed to the List
Policy of Confidentiality
How to Change Your Password
How to Request No Mail

Posting to the List

After you have been subscribed to FAPG and installed anti-virus software to you system, you may send messages to FAPG by addressing them to the list address: fapg@fortnet.com (yes this one is .com)

Virus Detection Software Required

If you already have a anti-virus program, make sure that the virus descriptions are updated at least every 30 days. Below are a couple of sites that sell virus protection tools. Most have a 30 free trial. Please do not post to the list until you have software installed.
AVG -- Free virus software for home use: http://free.grisoft.com/freeweb.php/doc/2/

Flaming Not Allowed

FAPG is an email group created to give and receive; advice, information, different viewpoints and positive support. When a disagreement on the list arises, we can: 1.agree to disagree, or 2.disagree with kindness and respect, remembering to always follow the rules of common courtesy. Flaming will not be tolerated on the FAPG list. It is the equivalent of *berating someone or their ideas over email. **Inflammatory statements will be considered flaming. Flaming will put your membership to the list at risk.
* Berate - to scold or condemn vehemently and at length
** Inflammatory statements - those that tend to excite to anger, disorder, or tumult;

Yelling

Words or phrases written in all capitals in email etiquette is considered yelling. Please refrain from using all caps in list email.

Chain Email

Please do not forward chain email. If you like a poem or story included in a chain email and think that it is of general interest to the membership of the list, clean it up (retype or get rid of all the forward arrows), retype the subject line and delete the part that makes it a chain letter (ie: send this to all your friends, or you will have good luck if you forward this on, etc.). Then you may submit it by including a few lines of introduction (ie: I'm sending this poem to FAPG today because it helps us focus on what we do have, rather than what we don't have.—your name) In the subject line please put; poem, story, or something else to identify the contents of your message so list members may delete if they are not interested.

Religious Posts

Please be sensitive that our group as a whole represents many religions, cultures and beliefs. If you feel that the general membership would be interested and you do post in this category please put something in the subject line that identifies the type of post.

Virus Warnings

Please do not post any unverified virus warning to FAPG. If you are in doubt contact the list manager at fapginfo@fortnet.org To verify see: McAfee Virus Information Library http://vil.nai.com/vil/default.asp

Use Plain Text and Send No Attachments

Do not send HTML, rich text, or stylized email, or messages in "quoted-printable" format. Not all email programs of list members will recognize such formats. Please send messages in ASCII or plain text. The list software cannot handle any type of attachment such as; pictures or text attachments, these will bounce to the list manager. If you have a jpeg picture that you would like posted to the website you may email it to fapginfo@fortnet.org with 'FAPG website submission' in the subject line.

Subject Line

Do title your email in the ‘subject line’ to relate to the topic of your email. For example, when you are sending your personal introduction you could put something like ‘Jane Doe Introduction’ in the subject line. If your email is a question about vitamins, then you might put ‘Vitamin Question’ in the subject line.

To Reply

To reply to the author only of an email posted you would click on "reply". To reply to the entire FAPG list, click "reply to all" in your software. I would encourage you to "reply to all" if the content is of general interest to the list and not of a personal nature. If the FAPG list address does not appear in the heading of your email in the "To:" field then you can add it and (*a few) other emails addresses as you desire by separating them with commas.
For example:

To: fapg@fortnet.com, johndoe@aol.com, janedoe@prodigy.com

You may also choose to send to (*a few) others by putting their email address in the "CC:" or carbon copy field.
*(a few) is generally 1-3 other email addresses. At some point a large list of CC's in your mail to: will be rejected by the software, because the field is too large.

To: fapg@fortnet.com
CC: johndoe@aol.com

An email addressed this way will go to everyone subscribed to FAPG as well as a copy going to John Doe.
Instead of having to remember and type out full email addresses when composing email, most people use "nicknames" or "address books" which are available in most email software packages.
In the above examples you could have set up nicknames as follows:

fapg, JohnD, Jane

You only have to set these nicknames up once in your address book and associate them with the full email address.  After that you could address your email as follows:

To: fapg, JohnD, Jane

How to change your password or email address subscribed to the List

Go to:  http://www.fortnet.org/wws/info/fapg/

 

Click Login
...be patient the pages may change slower than you are use to....

New screen opens
Enter email address (subscribed from)
Enter password (if you don't know your password click "send me a password". It
will be sent immediately by email)   Don't close this window until you have
entered a password and clicked login.

New screen opens
On top right hand border click Preferences.

New screen opens
Go down to Changing your email address
Enter your new email address
You can also create a new password in this screen.
Click the submit button.

Policy of Confidentiality

The following is the policy of confidentiality that we have on the FAPG list. The posts our members send in are intended for subscribed FA parents only. This list was created so we could speak to each other openly and honestly without the fear that what we say could somehow get back to our children, or yours. You should not allow a family member or friend to read the FAPG emails in their original form.  Do not forward any of the postings in their entirety or let any non-FAPG member read the list mail without the author's permission.  Some families share one email box at home. In this case a separate folder can be created where you store FAPG mail. Some software has the capability of having FAPG mail sorted and delivered to it's own folder automatically. It is up to each FA parent to explain our policy of confidentiality to other family members having access to FAPG list mail.  Remember, if you desire to share the posting from the FAPG list with your children or others, kindly get the author's permission first.

Feel free to ask for more help or clarification.

Sue Kittel,
FAPG list manager
fapginfo@fortnet.org