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FAPG Homepage- Introduction and
welcome to all parents of children with ataxia
Links- www links about Friedreich's ataxia and disability
Site Map
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Subscribe to FAPG- information on how to subscribe to the
parents mailing list
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What is Friedreich's Ataxia? --
From www.curefa.org
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Symptoms - Solutions -- Clinical symptoms of FA
Research -- links to recent
research in FA
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We've Learned - Things we have learned about raising children
with ataxia, from the FAPG list
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Coping
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For Parents - Coping
With Stress; ideas from FA Parents
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For Children - Book
review, Young People and Chronic Illness: Stories, Help and Hope by Kelly Huegel
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Daily Living - Practical ideas; bathroom
adaptations, ironing, ankle braces, compact footrests for WC, hanging towels with Velcro,
shoelaces, back brace cover.
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FA at School -- Telling Your Child's Class
About Friedreich's Ataxia, Students With Friedreich's Ataxia (where to download
article), Individual Education Plan (IEP) for Students with Friedreich's Ataxia, Emergency
Plan for School
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Are you drunk? How to prepare your ataxic
children to deal with this question
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SSI and Medicaid
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FA Fundraising
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